A journey through the highs and lows of William's Eye Condition called PHPV. By Kirstie (William's Mum)
Monday, October 25, 2010
Decisions to be Made
William and I went to see Dr Small who did his original surgery when he was 7 weeks old. I like Dr Small he seems to take the time to listen and the questions I ask he always gives an answer. Anyway we talked about eye alignment surgery and he has suggested another option which is: 1. doing surgery early rather than later (Dr Maslin has talked about doing it at 14 months) 2. doing the eye alignment on his good eye (i.e. cut the muscles in this eye to make the two eyes look straight instead of the micro eye). 3. Then use Atroprine Drops in his good eye to blur the vision to make the micro eye work (like using a patch however the good eye can still see something even tho it is blurry so it would be like training the two eyes to see together at the same time. When we patch only one eye is working) and hopefully somehow get the two eyes working together which is a bit of a long shot but we could give it a try. Now it seems simple enough BUT the thought of operating on his good eye does scare me as I'd HATE it if something drastic happened and then he lost vision in that eye!!! And when I read about the Atroprine Drops that freaked me out as one drop on a child's tongue can stop the heart beating! I'm really not sure what to do, we make all sorts of decisions for our children in their young lives but this one is so difficult. Having monocular vision would be fine and having some sight out of the micro eye just in case something happened to the good eye is a bonus. So I'm not sure we want to muck around with the good eye - just in case!!! Anyway Dr Small is calling Dr Maslin to talk about this and then they'll get back to us! No doubt I'll have lots of questions next time I speak to either one of them.
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