Another Eye Appointment 27 July 2010

On Sunday I decided to use a new lens that we have spare as the one I have been using for 2 months now seems to be a bit dirty and I've been trying and trying to clean it without much success. When William was patched with the new lens in he got so excited and went absolutely nuts under the play gym! But I'm not sure if that's because his new lens is super sparkly clean or if it was because he had had a great sleep?? Anyway we went to our eye appointment today and had to tell them that William has decided to be dominant in his "bad" eye again and we're not sure if its because of the new lens. So we are back to no patching until he becomes dominant in his good eye and then we're down to only 2 hrs per day of patching. Its great news but once again the PO said we HAVE to get him to be dominant in his good eye again. They also noticed that he can alternate which eye to use which is a positive. The only thing that is a real bummer is that William has got an eye turn which may or may not have happened if he hadn't had PHPV so his chances of binocular vision are pretty much zilch. Anyway I'm not so worried about that now. The PO also said we may consider having eye alignment surgery before he turns 1 to help with peripheral vision but he said to not hold out any hope for Binocular vision. He did say though it would be quite a challenge as William has a Micro eye! I asked Dr Maslin how many cataracts he sees in Wellington and he said sometimes we have 2 a year (which they've got now with William and James) and then they may not see any for 3 years. So being from a small city there's not much chance to get really familiar with pediatric cataracts and certainly not PHPV. I have joined a Yahoo Health Group called PHPV and its great to be on this site as I have learnt a lot from other parents and am able to go into my appointments with information that I have read from this site. I've really had to research PHPV myself to understand exactly what William has - though he is a tricky one as he didn't have a stalk which is associated with PHPV, he only had a damaged lens and a hazy vitreous.

When I think back 13 weeks ago when we were told he was virtually blind in his right eye and not expected to have any vision at all to him now being dominant in that eye (even though that's not great)I feel very blessed!