A journey through the highs and lows of William's Eye Condition called PHPV. By Kirstie (William's Mum)
Monday, July 5, 2010
Meeting with Dr Small - Wed 26th May
I had been thinking a lot about William's eye condition and researched a bit on the net about PHPV. I had also joined a PHPV support group on Yahoo. I read a lot of posts from other mothers that had children with this condition and there seems to be varying degrees of mild to severe PHPV cases. So on Wednesday 26th May I asked to see Dr Small (the PO who did the surgery) and had a LOT of questions that I wanted to ask him. Dr Small is fantastic and takes the time to listen to me and explain what we can expect with William. I asked Dr Small about William's lens, his retina, if he had to remove a stalk (constricted blood vessels which is typical of PHPV) and if all of William's eye was developed. Dr Small said he really doesn’t believe William has PHPV at all and its more a case of Cataract and a small eye. He told us that William's natural lens in his eye had to be removed and that he may be able to have an IOL (intraocular Lens) inserted into his eye when he is a lot older. Unfortunately IOL's are not like your natural lens so you are only able to focus up close or at a distance and then you need to use glasses or a contact lens for the opposite of the IOL. After we talked about a few more things we had to put in the new lens. I had cut my finger nails for this as I wanted to put it in as I didn't want William to have to go through the eye speculum thing again. Unfortunately we both couldn’t get the old lens out but Dr Small did and he made it look so easy. It was then my turn to put it in and (I'm still amazed at this) I got it in one go - unfortunately it wasn't to be so easy all the time!
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