A journey through the highs and lows of William's Eye Condition called PHPV. By Kirstie (William's Mum)
Tuesday, July 20, 2010
Eye Alignment
Its really bugging me that William's eyes are not aligned when the patch is off. It seems to be getting worse. When he had surgery and a few weeks after his eye's were actually aligned ok but now the weeks are moving on they seem to be worse. I'm not sure if they got worse when we upped the patching time, but in any case its annoying me. I knew there wouldn't be much chance of his eyes working together but its glaringly obvious that they won't now and I think that's what is upsetting me the most. God why did William get this rare condition!!! I think its one of those days. I'm not always down about it but some days it just pisses me off that he had to get this and I can't just take my baby out without a patch on! Everyone at Kindy asks how his eye is and how am I suppose to respond?? There's not much to say apart from "we believe he can see out of it, but in any case the eyes won't work together and we'll be patching for 8 - 10 years". Grrr, I'm sure I'll feel better tomorrow after a good sleep. Actually I think sleep deprivation is the answer, last night Lexie was scared about the monkey in Toy Story 3 and didn't get back to sleep until after 12 am and the night before Sophie was up about 3 times! and William was waking up 2 times a night, so after a good sleep I'm sure I'll feel a bit better.
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