Wednesday 16th June

Getting the lens out and in seems to be getting easier every week, I just hope it stays this way as when William is happy and not crying his eye doesn't clamp shut so getting the lens in is far easier than when he starts getting agitated and cries.

Today we went to see the PO again and they have told us to up the patching to 3 hrs a day. Dr Maslin also said something about William having to wear bi focals when he is older - I'm just realising that there will always be something new we will find out at every appointment which can be a surprise and sometimes those surprises aren't so nice to hear. In the back of my mind I'm always thinking about Glaucoma, scar tissue and other complications that could arise and the only way we ever find out is from going to our eye appointments.

We started patching 3 hrs a day and then noticed when William was unpatched he still favoured his PHPV eye and his "good eye” (left one) didn’t move very much. I did some research and I thought he had Reverse Amblyopia – I called the PO the next day and they told us to come in on 30th June to check his eyes again. I also spoke to the Orthoptist and she explained a few more things about how eyes work and how William's eyes will probably work. I asked whether William had any chance of gaining Binocular Vision and she said that would be the Ultimate Goal and what we would be working towards, however its probably very unlikely. When I heard that I felt quite down again, I'd pretty much come to terms with William having this condition and for some reason I thought with surgery, patching for years, going to our eye appointments, etc William would gain pretty much the same sight as any other person, but I guess this isn't the case. I have read a little about Binocular Vision and babies develop this by about 4 months of age. It is very rare for young babies that have had cataract or phpv operations to gain binocular vision especially if they get Strabismus (misalignment of the eyes) which is exactly what William has got. So we will be working towards getting good sight out of the right eye so he has a spare just in case something happens to his good left eye and if we have lots of good luck and no other complications, just maybe he'll get that ultimate goal of Binocular Vision.